General Tinnitus

rdrr

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My tinnitus has been awful lately. I have woken up in the middle of the night with pain from it, and today it is just as bad. I have been drinking lots of water, but worried it is something more.

Anyone hear (misspelling intended) suffer from it, and have any tips to get through a bad batch? ENTs who specialize in tinnitus seem to be few and far between. :(
 

Roller

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Sorry to read about your experience. It's not my area of expertise, but I know tinnitus can be quite debilitating and has a number of causes. I have it occasionally, but fortunately it comes on and disappears within a few minutes. My advice is to not limit your search to otolaryngologists (ENTs). For example, some audiologists work with tinnitus patients. Do a search and you should be able to find specialists in your area. There are probably also online support groups where you can get guidance. Good luck.
 

Colstan

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I have combined hyperacusis with tinnitus. I've always had the tinnitus, I got the hyperacusis after a botched MRI when the ear plug in my left ear fell out. I toughed it out, not realizing that I was getting permanent hearing damage. (The MRI wasn't necessary, making it worse.)

The short version of hyperacusis is that it makes regular sounds seem ridiculously loud and painful. I can't go to movie theaters, sporting events, or have loud music playing. Right now, I'm wearing headphones, not because I'm listening to music, but because my "clacky" keyboard is too loud. (Yes, I need a new quiet keyboard, obviously. I simply want to purchase one when I get a new Mac.) This is also why I am very careful about what computer gear I purchase, because it needs to be quiet.

On the opposite end, the accident made my tinnitus worse, meaning that I need some sort of sound going in the background so that I'm not distracted by that infernal hiss. The new Background Sounds feature in macOS Ventura has been a huge help, in that regard.

I was diagnosed with hyperacusis at the audiology department of my state's top university. The treatment for both hyperacusis and tinnitus is an expensive ($5,000 USD) listening device that plays specialized tones masked within music. The treatment usually lasts a full year with a typical daily listening time of 6 hours per day while wearing earbuds.

It sounds easier than it actually is, because real life gets in the way of using such a device on the regular. I regret doing it, because I was down $5K and the device's battery eventually died, out of warranty. I also managed to re-injure my ear, setting back my progress to day zero, which is where I am now.

If you have better discipline than myself, then give it a go. If not, then save the cabbage and don't waste your time. The unfortunate fact is, until better treatments are available, there's not much that can be done. You could see if any of the big universities in your area have an audiology department for an evaluation, because that's what an ENT is going to tell you to do.

Looking back, I don't think it was worth it, but that's entirely up to you to decide. What little encouragement I can offer is that while you never get used to it, you just deal with it. It took me about ten years to just roll with it. I wish I could be more help, but I've been on this rodeo before. Regardless, you have my sympathies, because I'm living it right now.
 

Clix Pix

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I occasionally experience tinnitus, but it is due to microtia and atresia, which came along as part of Treacher Collins Syndrome, with which I was born. I haven't quite identified yet exactly all the factors which trigger the tinnitus, but it is definitely annoying and distracting when it happens. Much of the time it presents as sounding like a strong wind blowing through my head. Always a relief when that finally stops and things are quiet again!
 

Herdfan

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My tinnitus has been awful lately. I have woken up in the middle of the night with pain from it, and today it is just as bad. I have been drinking lots of water, but worried it is something more.

Anyone hear (misspelling intended) suffer from it, and have any tips to get through a bad batch? ENTs who specialize in tinnitus seem to be few and far between. :(

Have you asked a Dr. to diagnose you for meniere's disease?

It can cause tinnitus, but cutting back on sodium intake can help. We have a friend who limits himself to 100mg of sodium a day, and no more than 30mg at any one meal.

Cut back on your sodium for a couple of days and see if that helps.
 

rdrr

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Thank you all. I'll got a line on an audiology office as well as a ENT with Tinnitus experience at BU Medical. Too bad this got really bad on a weekend that everyone was closed Monday. its been a tough couple of days. Hopefully I can get in soon and I will mention the meniere's disease @Herdfan.
 

AG_PhamD

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Thank you all. I'll got a line on an audiology office as well as a ENT with Tinnitus experience at BU Medical. Too bad this got really bad on a weekend that everyone was closed Monday. its been a tough couple of days. Hopefully I can get in soon and I will mention the meniere's disease @Herdfan.

Sorry to hear (no pun intended, seriously) about your tinnitus. I know that can be very rough for people. I have a coworker who has it so bad it can put her in a very dark place.

I was going to say the Mass Eye and Ear Infirmary (part of MGH) but I’m sure BMC is very good too.
 
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