General What’s Your Ailment?

[fooferdoggie]

With my wacky body and how I can only eat protein and veggies a few times a week I have to learn How much fuel I need to ride. I jsut tried a week or so of eating only when I was hungry and feel normal full I guess. but my riding got harder and harder and slower. I thought I was eating something that bothered me but nope. so I figured I was not eating enough. with me if i don't eat enough my body goes into starvation mode even if I eating a more normal amount of food. I don't lose weight either so its hard to know if I am not eating enough or the right amount. but I started eating a fair amount more and after a couple of days my power levels and energy returned. Idid a total of 65 miles today without a huge amount of problems. tired but not exhausted. so I need to find how mucho eat without overeating so I can lose weight. I know now what is too little. I don't know how fine a line with me is between starving and eating enough to lose weight.

 

[Huntn]

CPAP talk- My wife has sleep apnea, she’s been using a Phillips Resperonics System One CPAP. Got a recall notice that do to a foam breakdown item needs to be repaired or replaced. The kicker? Phillips has not got regulatory approval from the Federal Govt so my impression is that nothing is currently being done to repair/replace CPAP units, while they recommend that stop using the unit, and there was some mention of use of “unauthorized” O2 cleaning systems like the $300 SoClean (contributing to the foam breakdown issue), she has been using for several years that uses ionized O2 to kill bacteria in the mask and hose. What too convenient?? This is irritating.

Right now the plan is to contact our medical device supplier and get some advice on replacement or what? The idea of daily hand washing mask and hose is a realistically a non-starter. More to come...

 

[Alli]

CPAP talk- My wife has sleep apnea, she’s been using a Phillips Resperonics System One CPAP. Got a recall notice that do to a foam breakdown item needs to be repaired or replaced. The kicker? Phillips has not got regulatory approval from the Federal Govt so my impression is that nothing is currently being done to repair/replace CPAP units, while they recommend that stop using the unit, and there was some mention of use of “unauthorized” O2 cleaning systems like the $300 SoClean (contributing to the foam breakdown issue), she has been using for several years that uses ionized O2 to kill bacteria in the mask and hose. What too convenient?? This is irritating.

Right now the plan is to contact our medical device supplier and get some advice on replacement or what? The idea of daily hand washing mask and hose is a realistically a non-starter. More to come...

Now I have to wait until I reach today’s ultimate destination and unpack my CPAP to see which model I have. I know it’s a Phillips Resperonics, but I have no idea which one. The bright side for me, is I’m due for a new machine in January.

Keep us posted.

 

[User.191]

CPAP talk- My wife has sleep apnea, she’s been using a Phillips Resperonics System One CPAP. Got a recall notice that do to a foam breakdown item needs to be repaired or replaced. The kicker? Phillips has not got regulatory approval from the Federal Govt so my impression is that nothing is currently being done to repair/replace CPAP units, while they recommend that stop using the unit, and there was some mention of use of “unauthorized” O2 cleaning systems like the $300 SoClean (contributing to the foam breakdown issue), she has been using for several years that uses ionized O2 to kill bacteria in the mask and hose. What too convenient?? This is irritating.

Right now the plan is to contact our medical device supplier and get some advice on replacement or what? The idea of daily hand washing mask and hose is a realistically a non-starter. More to come...

Got lucky and replaced my aging System One a while back and am currently using a Resmed Air Curve.

One thing I was told when I first got the machine though was to never buy any cleaning stuff. I always use distilled water in the humidifier and clean the hose weekly with normal water and so far it's been good.

 

[Eric]

I'm pretty sure I need a CPAP machine, my wife swears I'm dying a dozen times per night but don't like the thought of going in for a sleep study.

 

[Huntn]

Got lucky and replaced my aging System One a while back and am currently using a Resmed Air Curve.

One thing I was told when I first got the machine though was to never buy any cleaning stuff. I always use distilled water in the humidifier and clean the hose weekly with normal water and so far it's been good.

Have you tried a SoClean? Wife has been using that and liking it, although Philips blames them for the breakdown of the foam in their System One. The idea of using ionized air to clean the breathing tube seems good. She is going though the final stages of qualifying for a new machine and in the meantime uses a disposable filter to make sure she is not inhaling any thing other than air.

I'm pretty sure I need a CPAP machine, my wife swears I'm dying a dozen times per night but don't like the thought of going in for a sleep study.

When you are younger, you can get away with it, but as you age, not breathing for long periods of time and you finally gasp recover, puts a strain on a variety of your organs and disrupts your sleep patterns. Go do the study. I say that but I probably should get a sleep study done too. I mitigate snoring by sleeping on my side,

 

[Eric]

Have you tried a SoClean? Wife has been using that and liking it, although Philips blames them for the breakdown of the foam in their System One. The idea of using ionized air to clean the breathing tube seems good. She is going though the final stages of qualifying for a new machine and in the meantime uses a disposable filter to make sure she is not inhaling any thing other than air.

When you are younger, you can get away with it, but as you age, not breathing for long periods of time and you finally gasp recover, puts a strain in a variety of your organs and disrupts your sleep patterns. Go do the study. I say that but I probably should get a sleep study done too. I mitigate snoring by sleeping on my side,

Just researching and it looks like they offer a home test study, I'll ask my doctor about it.

 

[Alli]

Just researching and it looks like they offer a home test study, I'll ask my doctor about it.

It will wind up depending on your insurance. My doctor was willing to do the home study, but my insurance company wanted me to do the in-facility study. Seems like they’d want it the other way around. I don’t understand insurance.

Meanwhile, I’ve finally found a mask that I like. Hopefully I’ll be able to get a new machine in December when it’s time to visit “Dr. Sleep” again.

 

[fooferdoggie]

I'm pretty sure I need a CPAP machine, my wife swears I'm dying a dozen times per night but don't like the thought of going in for a sleep study.

ya my wife did it twice. but she couldn't ever handle the machine and the last time because of covid there was no real support. plus it was a hassle for her being blind.

 

[User.191]

It will wind up depending on your insurance. My doctor was willing to do the home study, but my insurance company wanted me to do the in-facility study. Seems like they’d want it the other way around. I don’t understand insurance.

Meanwhile, I’ve finally found a mask that I like. Hopefully I’ll be able to get a new machine in December when it’s time to visit “Dr. Sleep” again.

What mask are you going for? I've tried so many but find only one Nasal mask seems to work.

I'm pretty sure I need a CPAP machine, my wife swears I'm dying a dozen times per night but don't like the thought of going in for a sleep study.

You should. The sleep studies are honestly fine - just plan to take the next day off work because chances are you'll ironically possibly not get much sleep.

Have you tried a SoClean?

Nope - just soap and water. Rather glad I did, now.

 

[Edd]

I’ve posted this here somewhere, but for sleep apnea and snoring I’ve had great results using this.

SnoreRx. The Solution for Snoring.

Our adjustable snoring mouthpiece is designed to help you stop snoring and get better rest each night. Cleared by the FDA for the reduction of snoring. Try risk free for 30 nights.

www.snorerx.com

Been using for a couple years. There’s a lot of similar products out there and dentists sell them also.

 

[Alli]

What mask are you going for? I've tried so many but find only one Nasal mask seems to work.

ResMed AirFit P10 For Her Nasal Pillow CPAP Mask System (62910) | EasyBreathe.com

ResMed's AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear takes quiet and lightweight to a whole new level. The innovative QuietAir woven-mesh vents reduce exhalation sound. The AirFit™ applies the proven seal technology of the Swift FX to a design that is 1/2 the weight.

www.easybreathe.com

AirFit P10 For Her Mask with Headgear​

 

[Huntn]

I’ve posted this here somewhere, but for sleep apnea and snoring I’ve had great results using this.

SnoreRx. The Solution for Snoring.

Our adjustable snoring mouthpiece is designed to help you stop snoring and get better rest each night. Cleared by the FDA for the reduction of snoring. Try risk free for 30 nights.

www.snorerx.com

Been using for a couple years. There’s a lot of similar products out there and dentists sell them also.

Of interest I looked at a similiar product called ZQuiet which looks like it operates on a similar principle, it holds your lower jaw forward. Many people at Amazon who gave it a one rating, called it extremely uncomfortable, some claimed that it might misalign your teeth/jaw. How comfortable Is SnoreRX? I’ve tried to sleep with a teeth guard to stop from grinding my teeth, which I’m not sure I do, but it was uncomfortable enough to keep me awake.

Amazon Sign-In

 

[User.191]

ResMed AirFit P10 For Her Nasal Pillow CPAP Mask System (62910) | EasyBreathe.com

ResMed's AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear takes quiet and lightweight to a whole new level. The innovative QuietAir woven-mesh vents reduce exhalation sound. The AirFit™ applies the proven seal technology of the Swift FX to a design that is 1/2 the weight.

www.easybreathe.com

AirFit P10 For Her Mask with Headgear​

Yup, same as me then!

 

[Edd]

Of interest I looked at a similiar product called ZQuiet which looks like it operates on a similar principle, it holds your lower jaw forward. Many people at Amazon who gave it a one rating, called it extremely uncomfortable, some claimed that it might misalign your teeth/jaw. How comfortable Is SnoreRX? I’ve tried to sleep with a teeth guard to stop from grinding my teeth, which I’m not sure I do, but it was uncomfortable enough to keep me awake.

Amazon Sign-In

It takes getting used to for sure, but all of these mechanical methods for snoring/apnea do. Now, I barely think about it. It’s important to brush your teeth before and after using it because mouthpiece = gross. But, it’s all gross.

These devices require a healthy set of teeth though. When I lose those someday I’ve no idea what I’ll do.

 

[Alli]

It takes getting used to for sure, but all of these mechanical methods for snoring/apnea do. Now, I barely think about it. It’s important to brush your teeth before and after using it because mouthpiece = gross. But, it’s all gross.

These devices require a healthy set of teeth though. When I lose those someday I’ve no idea what I’ll do.

I’d still recommend a sleep study. Holding your jaw forward is not a solution for sleep apnea, only snoring. It’s worth finding out if you have apnea or if you only snore.

 

[Edd]

I’d still recommend a sleep study. Holding your jaw forward is not a solution for sleep apnea, only snoring. It’s worth finding out if you have apnea or if you only snore.

There’s little doubt in my mind they’re connected, though. If one has obstructive sleep apnea, mandible devices can definitely help.

Me = Not a doctor or anything close.

 

[User.45]

I’ve posted this here somewhere, but for sleep apnea and snoring I’ve had great results using this.

SnoreRx. The Solution for Snoring.

Our adjustable snoring mouthpiece is designed to help you stop snoring and get better rest each night. Cleared by the FDA for the reduction of snoring. Try risk free for 30 nights.

www.snorerx.com

B: een using for a couple years. There’s a lot of similar products out there and dentists sell them also.

FYI: FDA cleared is a low bar.

 

[Edd]

FYI: FDA cleared is a low bar.

I’ve no doubt but my wife saying I’m 90% quieter is the only bar that needs clearing.

 

[User.45]

I’ve no doubt but my wife saying I’m 90% quieter is the only bar that needs clearing.

No, that's the concern. Did you have a sleep study? You can desaturate w/o snoring too. The real bar to meet is to keep your blood oxygenated. The jaw repositioning devices are only good for mild/mild-to-mod OSA.